Monday, July 26, 2010

Today Kjerstin wrote on her dry erase board " I don't want to" when it was time to go to therapy. It is a little hard to read because she doesn't lift her hand or out spaces between the words, but Mom is getting good at figuring it out. Mom always sends us pictures of it on our phones. They made Kjerstin go to therapy anyway, but they said she pushed back in the bed when they went to get her out. I'm sure she's tired and frustrated. I can't wait for that trach to come out so she can learn to talk and start expressing her thoughts and feelings. They also said she was tired so they moved her bed time up. She is still anemic but her hemoglobin is coming up. This is adding to her fatigue. Hopefully tomorrow is a better day for her. We will have these days. I can't begin to imagine what is going through her mind. I can't say that if I was in her position that I would want to go to therapy sometimes either.

They have started giving ice chips to Kjerstin to help her learn to swallow again. She had a little root beer in the ice chips today. They asked if she wanted lemonade in them and she shook her head "yes". She started doing that quite a bit today; shaking her head "yes" and "no". When they asked her different questions regarding things going on in her life right now, she answered them all correctly. This was very exciting! That brain of hers is working on healing.

And most importantly..........she wrote "Bo" on the dry erase board. for those of you who don't know, this is Jerimiah's nickname. He was very excited. He says it's because she likes him more. HAHA! This is our family joke!

Please remember all of us in your thoughts and prayers!



    a song for her.

  2. I finally got the pictures of the birds, and a few from Cindy's 50th birthday party, all printed out. Now all I need is an address so I can send them. You can email them to me at Let me know if there's anything else you need for the family when you head back out there on Saturday.